Updose #23

Bummer of a week. Wednesday morning after his dose, B got full body hives.  He was very nervous that he needed Epi it was stressful for us both.  We gave the medicines as directed when we called and watched the hives slowly leave.  He felt a little warm so we weren't sure if he was getting sick or if it was his too warm pajamas. They told us to back track and do 90ml the rest of the week :( We're SUPER bummed!

Sunday morning, same story.  After dose he broke out in hives.  We were really worried that we would not be able to updose today but the doctor thinks B just isn't eating enough.  Now that he's got a bunch of milk in his system he needs to eat more.  B has been slacking on eating and I've been getting after him, but he always claims he's full.  Here's hoping it works this week because they let us go back up to 120ml, only one week behind! Phew! This week will be a big mental challenge since we had problems doing it last week.